Name: Susan J (suesea)
Member Since: January 12, 2014
Website: Watch An ABC News profile of Nick, Memorial Sloan Kettering's own cheerleader!
Location: New York, New York
Profile: Loved One is a Cancer Survivor/Fighter
Type of Cancer: Pancreas Cancer
Medical Term for the Type of Cancer: Adenocarcinoma
Diagnosis Date: January 7, 2010
Stage of Cancer: Stage 4
Lymph Node Involvement: Yes
Surgery: Whipple Procedure
Chemotherapy: Abraxane, Fluorouracil (5-FU), Gemcitabine (Gemzar), Onivyde (Irinotecan Liposome), Xeloda
What I Hate Most About Cancer: The uncertainty. And with Pancreas Cancer, the knowledge that there really is no cure.
What I Have Learned From Cancer: Strong relationships get stronger
Metastasized? Where?: Lungs, 2012. Peritoneum, 2015.
Cancer Center: Memorial Sloan Kettering
Tips for others on how to deal with the mental struggles of chemo/cancer: Hundreds of new treatment protocols are being tested in Clinical Trials as I write, and drugs offering better outcomes and improved survival hit the market frequently. Don't give up hope.
Pancreas Cancer symptoms: Unrelenting pain in the upper belly
Surgery Description, Dates & Side Effects: Whipple Procedure performed January 19, 2010 at Columbia Presbyterian. The cancer was staged at 2b, with positive margins and lymph nodes.
Chemotherapy Description, Dates & Side Effects: Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced.
Radiation or Proton Therapy Description, Dates & Side Effects: Radiation followed first course of chemotherapy, and was given for 28 days in September 2010
Fundraising Description: I support the Lustgarten Foundation for Pancreatic Research; the Pancreatic Cancer Action Network; Memorial Sloan Kettering Cancer Center.